Through the Lupus and APS Center, HSS is able to advance basic, translational, and clinical research for lupus. In partnership with our patients, significant progress has been made. It is also known as “bench to bedside” research. Juliette Kleinman, LCSW ACSW - Senior Social Work Manager, Rheumatology. Hospital for Special Surgery (HSS) ↳ Mary Kirkland Center for Lupus Research, HSS . IFN3958g: A Phase I, Randomized, Double-Blind, Placebo Controlled, Escalating Single-And-Multiple Dose Study of the Safety, Tolerability and Pharmakokinetics of rhuMAb INFalpha in Adults with Systemic Lupus Erythematosus; sponsored by Genentech. She is responsible for advancing the goals of the Lupus and APS Center: expanding knowledge through research trials and studies, enhancing patient education, and maximizing patient health outcomes and satisfaction. She participates in research and quality initiatives to identify and address any health disparities to insure the highest quality care for all patients. Lupus Center Fast Track Appointments. If a cold virus invades, for example, you have two to three days of sniffles and a runny nose, but within a few days, you're better because these troops have done their job. Ms. Rodriguez works with patients who are newly diagnosed or coping with chronic rheumatologic disease. Specialist physicians who are interested in participating in the Multispecialty Panel are welcome to contact the Lupus & APS Center to discuss the role and requirements. 4 in rheumatology by U.S. News & World Report (2020-2021), and named a leader in pediatric orthopedics by U.S. … Marta Guerra – IMPACT & PROMISSE Project Coordinator (Dr. Jane Salmon) Coming to Terms . Combining research advances from HSS scientists and other researchers with deep clinical expertise enables us to provide a tailored, evidence-based approach. It is most commonly characterized by skin rashes (typically a butterfly rash across the face), arthritis, kidney disease, oral ulcers (sores), neuropsychiatric problems, hair loss, fever, and fatigue. When antibodies lock on to the invading proteins, they destroy them. The Complement System is another group of proteins in our blood that improves and complements the function of antibodies. HSS offers free programs that reflect our comprehensive approach to care for people with systemic lupus erythematosus. It is primarily set to prevent infections. Antibodies are proteins that battle the invaders. Ms. Rosa refers patients to appropriate life enhancing services. RITAPS: A Pilot Study of Rituximab For the Anticoagulation-Resistant Manifestations of Antiphospholipid Syndrome, STATINS: Effects of Fluvastatin on Pro-inflammatory and Pro-thrombotic Markers in Antiphospholipid Syndrome Patients, Cognition: Cognitive Dysfunction, Diffusion Tensor Imaging and Functional Magnetic Resonance Imaging (MRI) in Antiphospholipid Antibody (aPL)-negative Systemic Lupus Erythematosus (SLE) versus aPL-positive non-SLE Patients, APLASA: Determining the role of aspirin for thrombosis prophylaxis in antiphospholipid syndrome. While participating in the Registry and Repository will not have a direct impact on an individual’s care, the information gathered has the potential to advance knowledge about the mechanisms of organ damage and the causes of SLE. Ms. Jurenko is a member of the National Association of Social Workers and has held positions on the board of the East Side Council on the Aging. Autoimmune means that someone’s immune system attacks itself. Antigens are any proteins that the body sees as foreign - the invaders. Mary Kirkland Center for Lupus Care We are here to help you manage your illness by providing individualized care and support to meet your specific needs. Lupus Foundation will take questions on lupus and the health challenges one faces after diagnosis. SL105: The Systemic Lupus Erythematosus (SLE) Activity Gene Expression (SAGE) Study; sponsored by Expression Diagnostics. Lupus, often “invisible”, can be isolating and hard to understand. This refers to numerous professionals with different skills providing a total treatment approach for each patient by focusing on the varying aspects of the physical and psychological effects of the disease. Das Unternehmen bietet von der Einzellösung bis hin zu umfassenden Komplettangeboten hochwertige Einbruchmelde-, Smarthome- und Videoüberwachungslösungen zum attraktiven Preis. The Mary Kirkland Center for Lupus Care, founded in July 2009, provides a multi-disciplinary approach to lupus care and treatments and encompasses clinical patient care, physician education, educational activities and programs; as well as social work support and programs. In addition, HSS provides other patient support services such as case management, pastoral care, and patient advocacy. Jeffrey Zhang-Sun  â€“ Clinical Research Coordinator (Dr. Kyriakos Kirou & Dr. Mary Crow) Since its foundation in the year 1967, the Hanns Seidel Foundation practices political education with the aim of supporting the "democratic and civic education of the German people with a Christian basis", as the foundation's statutes say. In her role, she conducts assessments of rheumatology patients 60 years of age and older coping with chronic rheumatic disease. Scientists and clinicians at HSS are constantly working to advance understanding of the causes of disease and develop novel treatments for lupus and APS. HSS Lupus and APS Center - Top Ranked in Rheumatology Lupus and APS Center of Excellence Access to world-class, patient-centered medical care, research, support and education The goal of the Lupus and Antiphospholipid Syndrome (APS) Center of Excellence is to provide the highest quality of care … The chat will conclude at … Systemic means that it can cause generalized symptoms like fever, joint pains and swelling, and fatigue, to name a few. Systemic lupus erythematosus (“SLE” or “lupus”) can be overwhelming and mysterious at times. She is a Certified Health Education Specialist. Lupus and APS are autoimmune diseases that are highly variable from patient to patient and unpredictable over the course of any one patient’s life. She is responsible for the planning and operational oversight for program initiatives, training and supervision of program staff and volunteers, initial screening and psychosocial assessment and social work intervention with patients and their families. HSS Rheumatologist, Lisa Sammaritano, MD talks about reproductive health issues facing women with lupus. Lupus occurs more commonly in women of reproductive age, at a ratio of 9 to 1. The goal of the Lupus and Antiphospholipid Syndrome (APS) Center of Excellence is to provide the highest quality of care to enhance our patients’ lives. LANtern is here to help. news. Ms. Jurenko has a specialty in social work practice in gerontology, nephrology, and caregiver support with many years of experience working in the community and private sectors. Conference Center Munich; hss.de/en. The immune system uses complex regulatory mechanisms to avoid reactivity against self-antigens. The goal of the Lupus and Antiphospholipid Syndrome (APS) Center of Excellence is to provide the highest quality of care to enhance our patients’ lives. Formed because the last four decades have been quite slow in producing FDA-approved lupus medications, the LCTC is comprised of over twenty of the best lupus centers in North America whose shared mission is to support the process of getting promising new therapies to market for people with lupus. 01, 2019 | 16:07 PM America/New_York. No one test can diagnose lupus. Juliette Kleinman, LCSW ACSW is the Senior Social Work Manager, Rheumatology. Lupus research around the world has recently flourished, in terms of the number of studies performed, their quality of work, and the support available, which results in remarkable advances. +44 (0) 20 7234 2155. londonlupuscentre@hcahealthcare.co.uk. Finden Sie perfekte Stock-Fotos zum Thema Hss= sowie redaktionelle Newsbilder von Getty Images. Make an appointment with one of our physicians or call us at 877.SLE.CURE (877.753.2873). Educational Centres. The LCTC engages in many different types of educational activities aimed at demonstrating the need for lupus clinical research and highlighting issues that are unique to lupus clinical research and has recently initiated a North America-wide registry of lupus patients. Mary Kirkland Center for Lupus Research, HSS did not contribute to any primary research papers from Nature Index journals in the current 12 month window. The Center is heavily involved in enrollment and implementation of lupus research. Susan Rodriguez is a Licensed Social Worker at Hospital for Special Surgery. Lupus can affect any organ in the body, including the heart, lungs, eyes, skin, blood, kidney, and liver. Find any specific information contained in this web site by entering the subject you’re interested in and clicking the search symbol. Immune Abnormalities – Although in a healthy person the immune system is always on patrol, keeping us healthy, in lupus, the immune system overreacts and forms antibodies against cells in our joints, skin, or other parts of the body. Ms. Toral also provides direct support as needed upon referral from Rheumatology adult and pediatric social workers, and other health team members regarding program services. Headquartered in Denver, Colorado, HSS employs more than 4,000 team members. Basic research is laboratory research that studies nucleic acids and proteins that are considered important for a disease such as lupus, by experimenting with cells (animal or human) and animal models of the disease. Our extensive data and sample collection has been used in local research and in collaborations with institutions throughout the United States. HSS' "Lupus & General Health" chat with Alliance for Lupus Research is now beginning. If the 1 last update 2021/01/16 you have lupus and arthritis, it’s important to determine which type of arthritis you … Dissecting out the mechanisms leading to disease in lupus will help lead to better therapies for this disease. Ms. Rodriguez’s special interests include managing chronic illnesses, health care equality, patient-centered care and research. Clinical research involves patients in studies of the safety and efficacy of new drugs, largely in order to obtain approval from the Food and Drug Administration (FDA) before the drug can be made available to the general public. Additionally, she holds a Master of Business Administration degree from the University of Chicago and a Bachelor of Arts degree from Yale University. Translational research is also a major part of our lupus research activities at our institution. A diagnosis for lupus is generally based on laboratory tests that exclude other diseases which may have similar symptoms … Albairis Gomez, LMSW - Social Worker, VOICES 60+ Senior Advocacy Program. 535 East 70th Street, New York, NY 10021 EXPLORER (U2971g): A Randomized, Double-Blind, Placebo-Controlled, Phase II/III Study to Evaluate the Efficacy and Safety of Rituximab in Subjects with Moderate to Severe Systemic Lupus Erythematosus; sponsored by Genentech. She was a past chair of, and held leadership positions in, the East Side Council on the Aging. Staff from the Hospital for Special Surgery and the S.L.E. Resource Center. Understanding Laboratory Tests and Results for Lupus (SLE), Dealing with Uncertainty in Your Lupus Diagnosis, Lupus Nephritis: What You Should Know about Lupus and Kidney Disease, Lupus Across the Lifespan: SLE in Children, Teenagers, Adults and Seniors, Top 10 Series: Pediatric Antiphospholipid Syndrome, Antiphospholipid Syndrome: An In-Depth Overview. In this video series , Dr. Stojan of the Johns Hopkins Lupus Center shares an overview of this disease, signs and symptoms, diagnosis, treatment and lifestyle considerations. While treating lupus patients, the goals of rheumatologists are to: a) relieve symptoms of active lupus; b) prevent organ damage from lupus, such as kidney failure requiring hemodialysis; c) prevent adverse events of medication, such as osteoporosis due to corticosteroids; and d) ultimately achieve clinical remission of the disease. Data and samples have also been used to identify patients who may respond to one treatment versus another. Our HSS lupus and APS specialists have decades of experience caring for patients, compassionately applying their knowledge to each individual under their care. If you are interested in participating in - or finding out more about - the studies and programs mentioned in this article, call Pretima Persad, M.P.H., Manager of the Mary Kirkland Center for Lupus Care, at (646) 797-8839. See all of our community events and classes. Share Your Story . In the Lupus … Clinical research trials are usually done in three phases: In addition, even after a drug is approved by the FDA for one disease, further research may be conducted to further evaluate their safety, the use of the drug in different doses or in patients with different diseases, etc. The Repository is a collection of patient blood samples stored for research studies. We are looking for ways to suppress the production of those abnormal antibodies without tamping down the rest of the immune system that we need to protect us against and fight infection. In lupus, basic researchers investigate genetic causes of the disease, factors (proteins) in the blood or tissues, and their interplay. HSS is part of the Lupus Clinical Trials Consortium, Inc. (LCTC), also supported by the Sniders. In lupus, these mechanisms are not well functioning, and this allows for the generation of some antibodies to target themselves; these are called “autoantibodies.” A typical example is the antinuclear antibodies (ANA) that are present in more than 95% of lupus patients. The Lupus Research Alliance provides valuable resources to both patients and researchers. These articles were tagged with 'Autoimmune diseases' & 'Lupus' & 'Inflammatory Arthritis Center' & 'Pediatric Rheumatology' & 'Rheumatology' & 'Scleroderma and Vasculitis Center' in the Newsroom of Hospital for Special Surgery Lupus… At its core is Hospital for Special Surgery, nationally ranked No. The Lupus Clinic at Boston Medical Center is a partnership between the Departments of Rheumatology, Dermatology, Nephrology, and Obstetrics/Gynecology. Diagnosing lupus is difficult because signs and symptoms vary considerably from person to person. IM101075: A Phase II/III Multi-Center, Randomized, Double-Blind, Placebo-Controlled Study to Evaluate the Efficacy and Safety of Abatacept Versus Placebo on a Background of Mycophenolate Mofetil and Glucocorticosteroids in Subjects with Active Proliferative Glomerulonephritis Due to Systemic Lupus Erythematosus; sponsored by Bristol-Myers Squibb. ROSE (IFN4575g): A Phase II, Randomized, Double-Blind, Placebo-Controlled Study to Evaluate the Efficacy and Safety of Rontalizumab (rhuMAb INFalpha) in Patients with Moderately to Severely Active Systemic Lupus Erythematosus; sponsored by Genentech. Mycophenolate Mofetil for Lupus Nephritis: A Prospective, Randomized, Double-Blind, active controlled, Multicenter trial to assess the efficacy and safety of mycophenolate mofetil (MMF) in maintaining remission and renal function in subjects with lupus nephritis who underwent successful induction therapy with either MMF or cyclophosphamide; sponsored by Aspreva. If you would like to obtain more information or to see if you qualify for a study or trial, contact 1.877.SLE.CURE. Educational Centres. Susan Rodriguez, LCSW - Social Worker, Rheumatology. hss.de/en. Active or recently completed APS clinical studies that HSS researchers have initiated are (selected): Perhaps the most important facet of modern lupus research and treatment is the focus on multidisciplinary care. LANtern also collaborates with health care, multi-service, and community organizations to enhance awareness of lupus … HSS exists to comfort and assure – with the industry’s most well … HSS.edu; FAQ; Find a Physician; Patient and Visitor Information; Conditions and Treatments; Departments & Services; About HSS; Contact HSS; HSS … Ms. Rodriguez also provides support, education and resources to patients both in person at the HSS Pediatric and Rheumatology clinics and over the phone. 3 in rheumatology by U.S. News & World Report (2019-2020), and named a leader in pediatric orthopedics … … Eliza Ngan-Dittgen - Senior Program Associate, LANtern® (Lupus Asian Network). JoAnn Vega – Clinical Research Coordinator (Dr. Medha Barbhaiya, Dr. Doruk Erkan & Dr. Michael Lockshin). This research aims to bring new discoveries in basic research directly to the patient. Our specialists in these departments have experience caring for hundreds of patients with chronic autoimmune diseases, including lupus. Institute for International Cooperation – Peace and development. Ms. Rosa’s second year of field placement was with HSS’s VOICES 60+ Program. A clotting disorder called antiphospholipid syndrome (APS) can develop all by itself or in association with lupus. There are many medication options to treat lupus, such as corticosteroids, antimalarial medications (e.g., hydroxychloroquine, also known as Plaquenil), and immunosuppressive medications (e.g., azathioprine or mycophenolate mofetil). Priscilla Toral, LCSW, is the Program Manager for LupusLine® and Charla de Lupus(Lupus Chat)® programs, national peer based support and education programs for people with lupus and their loved ones. We know that living with lupus is challenging and unpredictable, so we posed a question to our lupus patients: What do you want and need from a smartphone app to help manage your lupus… She provides ongoing leadership and support in race, ethnicity and language, as well as LGBT hospital-wide initiatives through the development of appropriate tools and evaluation processes, and collaboration with other department leadership. Johns Hopkins Lupus Center ABOUT THE CENTER Meet Dr. Petri LUPUS PRIMER Basics of Lupus Causes of Lupus Signs, Symptoms, and Co-occuring Conditions How is lupus diagnosed? There is vast, ongoing clinical research being done with lupus patients all over the world. Active or recently completed multi-center lupus clinical trials that HSS researchers have participated in are (selected): Lupus Registry & Repository: In our Lupus Registry database we collect information about patients diagnosed with SLE, including clinical manifestations of lupus, medications, and laboratory tests. Ms. Rosa received a Master of Social Work degree from New York University’s Silver School of Social Work with a concentration in social work practice in gerontology. These criteria are different for every clinical trial. Some of the information given in this article was originally presented at Hospital for Special Surgery’s SLE Workshop. The combination of blood and urine tests, signs and symptoms, and physical examination findings leads to the diagnosis. T lymphocytes decide whether to bring in other battalions. How is lupus diagnosed? The article links below are intended for those who have symptoms, have been diagnosed or have complications from lupus, lupus nephritis or APS. These articles were tagged with 'Lupus' in the Newsroom of Hospital for Special Surgery. BELONG (WA20500): A Randomized, Double-Blind, Placebo-Controlled, Multicenter Study to Evaluate the Efficacy and Safety of Two doses of Ocrelizumab in Patients with WHO or ISN Class III or IV Nephritis due to SLE; sponsored by Genentech. Our non-clinical staff provides programming, education and support, while the research coordinators enable patients to partner with us in the pursuit of better medical outcomes. Ms. Smith focuses on community health and primary prevention of co-existing conditions. B lymphocytes are instructed to produce antibodies that attach to the invader in order to destroy it or block its action. Ms. Jurenko is a Licensed Clinical Social Worker and received her Master of Social Work degree from the Rockefeller School of Social Welfare, University at Albany. In addition to clinical trials, HSS has several research programs that center on the prevention of musculoskeletal diseases. Hospital for Special Surgery (HSS) rheumatologists are dedicated to treating and caring for people with lupus. LANtern (Lupus Asian Network) is the only national hospital-based bilingual support and education program dedicated to serving Asian Americans with lupus and their families. She completed a Post- Masters Certificate in Palliative and End of Life Care from New York University Silver School of Social Work. Basic research is called translational when it directly studies human material and has direct potential to lead to practical applications in diagnosis and therapy for the disease. She works with adult patients who are 18-59 years of age in the Ambulatory Care Center and Department of Medicine. Clinical trials have been set up with the intention of learning more about the disease by monitoring patients who are undergoing various treatments. Journal Articles and Publications: published articles on PubMed, HSS Professional Newsletters: Subscribe to Rheumlink, our professional rheumatology newsletter. These physicians are tightly integrated with the rest of the staff of HSS nurses, social workers, and radiologists. … LISA (MI-CP126): A Phase I, Randomized, Double-Blind, Placebo Controlled, Dose-Escalation Study with an Open-Label Extension to Evaluate Safety and Tolerability of a Single IV Dose of Medi-545, A Fully Human Monoclonal Antibody Directed Against Interferon Alpha Subtypes, in Patients with Systemic Lupus Erythematosus; sponsored by MedImmune. Weill Cornell Medicine featuring Jane E. Salmon, MD ... Read more. Lupus (SLE) stories from our community of patients. Presented live on October 8, 2020, Medha Barbhaiya, MD, MPH and Randy Longman, MD, PhD discuss diet and the microbiome in relation to the incidence and severity of lupus. HSS offers a career where you can really make a difference in people’s lives. Her work includes patient and doctor outreach to increase development, awareness, and use of health programs in the Lupus Center. © Hospital for Special Surgery. One of the cell types that T lymphocytes often stimulate to action are B lymphocytes. HSS is the world’s leading academic medical center focused on musculoskeletal health. Lupus. Ms. Kleinman received her Master of Social Work degree from New York University Silver School of Social Work and is a Licensed Clinical Social Worker and holds memberships in the Academy of Certified Social Workers, National Association of Social Workers, National Society on Aging, and Society of Social Work Leadership in Healthcare. Please write your brief questions below this thread and keep questions related to today’s chat. LUPUS-Electronics ist ein führender deutscher Markenhersteller für innovative, leicht bedienbare Sicherheitstechnik. She has been active in her home community in youth substance use prevention. HSS is the world’s leading academic medical center focused on musculoskeletal health. Although the treatment program focuses on medical management of the disease and its symptoms, critical work by each of the HSS lupus support programs, offered by the Department of Social Work Programs, including LupusLine®, Charla de Lupus/Lupus Chat® , LANtern® (Lupus Asian Network), and the SLE Workshop, have addressed the emotional and educational concerns of culturally diverse communities. T lymphocytes are the prime immune movers - the traffic cops. They also have memory, so they know what invader they are dealing with. Request an Appointment Call us toll-free +1.800.796.0482. Having access to high quality medical care and resources for social, emotional, and other support can empower you to care for yourself and improve the quality of your life. Ms. Kleinman has a specialty in social work practice in gerontology and health disparities with many years of experience working in the community, private and non-profit sectors. LupusMinder can help. Through the Lupus and APS Center, HSS is able to advance basic, translational, and clinical research for lupus. Giselle Rodriguez, LCSW is the Program Coordinator for the Charla de Lupus (Lupus Chat)® Program, a support and education program for people with lupus with an emphasis on Spanish-speaking communities. In this forum, many physicians (including rheumatologists, kidney and skin specialists, psychiatrists, and gynecologists), as well as nurses, social workers, and research coordinators come together to discuss and provide expert help to the individual lupus patient’s problems In order to better understand basic research, the following information may be beneficial: The immune system is designed to prevent invaders, such as viruses or bacteria, from damaging our bodies. Ms. Rodriguez has a keen interest and experience in the psychotherapeutic management of chronic pain. For professional health education, please see the Research & Professionals tab (on this page) and the HSS Education Institute. Read how these patients from all walks of life got back into their game of life. London Lupus Centre is a world leading centre focused on the diagnosis and treatment of Lupus and Lupus related diseases. Margaret S. Smith, MBA, MPH, CHES - Manager, Rheumatology. Patients with lupus and or antiphospholipid syndrome (APS) can call us to make an appointment with one of the center’s physicians. LANtern® is the only national hospital-based bilingual support and education program dedicated to serving Asian Americans with lupus and their families. HSS has many premier physicians and basic/clinical researchers who have vast experience and knowledge of APS. Alexandra Jurenko, LCSW - Manager, VOICES 60+ Senior Advocacy Program. They coordinate care with specialists in other fields to help manage a patient's whole health status. There is also specific support and advocacy for older adults through the VOICES 60+ Senior Advocacy Program, available for our hospital’s patients, as well as assistance  navigating through the complex maze of Medicaid managed care, through the VOICES Medicaid Managed Care Education Program. Tags. Therefore, in the case of lupus, it might lead to damage in conjunction with the ANA. Update We are open for telephone, video and face to face consultations. Salmon. The focus of these projects is on strengthening civil society, civic involvement and promoting the rule of law, education and management … Patients may not always feel comfortable speaking about these concerns with their doctor, and may benefit from connecting with others who have the illness. Due to the high volume of questions, we may not be able to answer them all in the time frame allotted, but will respond to them at a later date. Ms. Rodriguez obtained her Bachelor’s Degree in Psychology at CUNY-Hunter College, and her Master of Social Work Degree at Columbia University School of Social Work. Through these programs, you can learn about your illness and learn to live more fully - both from health care professionals and from others who have the same illness. Early recognition and effective management is therefore crucial for optimal outcomes. Grand Rounds: Management of Complex Cases: this publication profiles highly complicated cases at HSS in full detail with follow-up data and a discussion on clinical treatment.